Föräldrars upplevelser av att leva med ett barn med typ 1-diabetes : en litteraturstudie

Sammanfattning: Background: In Sweden type 1-diabetes is the most common chronic disease among children. When a child suffers from type 1-diabetes the parents gets affected as well. The children’s need of support from the parents depends on the child’s age, maturity and individual needs. Aim: The purpose of this study was to describe the parents’ experience of living with a child that suffers from type 1-diabetes, as well as describe the articles research groups. Method: A descriptive literature study that’s based on 11 articles, nine of qualitative approach and two of qualitative- and quantitative approach. Result: Parents to children with type 1-diabetes experienced fear, grief, anxiety and frustration. Type 1-diabetes among children influences parents’ life in many ways. The disease required planning, attention and adjustment. Parents experienced that type 1-diabetes affected school, work, sleep, diet and physical activity. Conclusion: Parents of children with type 1 diabetes experiences that the disease required a great commitment and responsibility. The majority of the care and treatment is handled by the parents, due to the children's lack of self-care. The nurse therefore has an important role to provide information, support and encourage both to patients and their families regarding care and treatment.