Increasing response rate and expediting the return of health questionnaires : - A study at the Specialized Pain Rehab Clinic, Danderyd Hospital

Sammanfattning: Health questionnaires are widely used. A low response rate can lead to biased results and affect the validity of the study. This thesis investigates what can be done to increase the response rate and expedite the return of health questionnaires. The main aim of the study is to provide suggestions on how to improve the response rate to the National Pain Registry’s questionnaire at Danderyd Specialized Pain Rehab Clinic, although the result is significant in other contexts where questionnaires are used and a high response rate desired. Material has been collected through literature search, observations, interviews with patients at Danderyd Specialized Pain Rehab Clinic and interviews with clinics that have a high response rate according to the National Pain Registry’s reports. Several factors affecting response rate was found in the literature studies and interviews. Providing a digitalized alternative, clearly explaining the aim of the study and why completing the questionnaire is important and making the participants feel like stakeholders in the study are examples of areas where improvements can be made. According to the patient interviews about the National Pain Registries first and second questionnaire some problems to fill in the questionnaires were due to difficulties in estimating the pain because of shifting pain intensity, unclear phrasing of the questions or answer and a feeling of lack of someone to ask. Reasons for not returning the one-year follow-up questionnaire were that the questionnaire never was received, it got cluttered and therefore never mailed back or that it was not seen as important nor beneficial to the patient. Suggestions made to increase response rate and expedite the return of the questionnaires based on the findings include increased information about the questionnaires and the National Pain Registry, notifications and reminders to help patients remember and tracking the mailed questionnaire to make sure it reaches the patient. Changing the front-page layout could make it more interesting to look at. To clarify questions, the option to complete all questionnaires at the clinic could be given and a computer alternative. The option to hand back the questionnaire either by mail, digitally or at the visit along with a scheduled one-year follow-up meeting could both increase response rate and expedite the return.