Personer med typ 1 diabetes - retrospektiv tvärsnittsstudie om sambandet mellan patientrapporterat utfallsmått och glykemisk kontroll

Sammanfattning: Background: Glycemic control in individuals with type 1 diabetes demands support and education by caregivers in diabetes care. Patient-reported outcome measures (PROM) and patient-reported experience measures (PREM) constitutes an important function in diabetes care The Diabetes Questionnaire has been created for clinical use with the purpose of broadening the approach to individuals with type 1 diabetes. Purpose: The purpose of this study was to map the correlation between PROM and PREM from Diabetes questionnaire and HbA1c. Method: This study was conducted with a quantitative retrospective cross-sectional design. Data was selected from a diabetes clinic in the middle part of Sweden and was retrieved from already answered Diabetes Questionnaires. 145 individuals with type 1 diabetes were included in the study. Data has been analyzed with Spearman´s correlation coefficient to produce the correlation between PROM/PREM and HbA1c. Main results: The result showed significant correlation between HbA1c and following 12 categories: General mood, Mood and strength, Comfort, Handle my diabetes, Food and exercise, Diabetes no obstacle, Blood sugar no obstacle, Availability, Availability nurse, Availability physician, Continuity and Aid and medical. The strongest correlation is Diabetes no obstacle. The other two categories Support from others and Support from the diabetes care showed no correlation with HbA1c.  Conclusion: The result showed a large spread of all categories in the Diabetes Questionnaire. Individuals with higher HbA1c had in greater occurrence fear of sequelae and felt diabetes as an obstacle. Individuals with lower HbA1c experienced better prerequisites to manage their diabetes. By exploring the relationship between PROM/PREM and glycemic control, the capacity and resources of the healthcare staff and healthcare can be targeted where the priority is highest.