EN förändrad KROPP, ETT förändrat LIV : Patienters upplevelser av att leva med stomi
Sammanfattning: Background: When patients suffer from sicknesses such as rectal cancer, Chrons disease and ulcerative colitis, then ostomies can be a course of treatment. Earlier research show that nurses lack knowledge to be able to care for patients with ostomies while expected to have an important role in the patients’ well-being. Problem: Lack of knowledge from the general nurse about ostomy care impacts patients since their lives are affected by living with a stoma. Aim: To describe patient´s experiences of living with a stoma. Method: A literature review based on ten qualitative scientific articles with descriptive synthesis. Results: Experiences shown in the results were divided into three themes: “Emotionell influence”, “Changes in everyday life” and “Acceptance of living with a stoma”. Out of these themes came six subthemes: “To feel worry”, “To feel frustration”, “To feel shame”, “To live with a changed body”, “To be limited physically in one´s life”, “To lose control”. Conclusion: Life with a stoma brings daily changes and influences the patients emotional state in relation to their body and their new situation. These experiences can in their turn evolve and patients can come to accept the stoma over time. Patients experiences a lack of information concerning ostomy care and support in living with a stoma. The results show that patients due to their ostomy experience suffering related to illness, to care, and to life.
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