Att leva med en partner med demens : En litteraturstudie

Sammanfattning: Background: Dementia is an increasing global health problem as the population grows older and older. It is usually the partners who must take care of these people with dementia, which can be a very tough role. Aim: The aim of this study is to illuminate experiences of living with a partner with a dementia diagnosis. Method: A literature-based study was performed, analyzing 13 qualitative articles with Friberg's five step model. Results: Three main themes emerged with ten subthemes. The first theme was changes in the relationship with three subthemes, personality changes, from partner to career and changes in the intimate and loving relationship. The second main theme was the need of support with four subthemes, an absent presence, difficultness of communication, social support and the feelings of relief. The third theme was the psychosocial strain with three subthemes, an emotional roller coaster, strategy development and an uncertain future. Conclusion: This study mainly shows negative experiences of living with a partner with dementia. Partners are affected by the personality changes of the person with dementia and the increased need for care that leads to a changed life situation and a degraded well-being. Therefore, the nurse has a great responsibility in supporting these partners, confirming their individual needs and providing information about help and support they can get from society.