Att leva med en närstående som har förvärvad hjärnskada - Anhörigas upplevelse och behov av information och stöd

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Sammanfattning: Background: In people with acquired brain injury, changes in psychological functions can occur. These can be difficult for relatives to understand and manage. The well-being of relatives can be negatively affected. Previous research shows that relatives experience a lack of information and support following their close relatives' illness and the time afterwards. Aim: The study aimed to examine relatives' experiences of information and support, and how their life situation has been affected when a close relative has changed in psychological functions as a result of acquired brain injury. Method: A qualitative semi-structured interview study. Seven relatives were interviewed. The material was analyzed with qualitative content analysis with an inductive approach. Results: The results are presented in three categories and a total of seven subcategories. Relatives described that there was a lack of sufficient information about the causes and prognosis regarding changes in the psychological functions of their close relatives. They also felt that not enough support was offered. The life situation was described as changed as a result of the acquired brain injury. The relatives experienced less freedom and a varied mood. The relatives highlighted the need for more information and support throughout the continuity of patient care, as well as better follow-up. Conclusion: There is a great need for information and support among relatives which are not met, and that needs to be noticed by healthcare professionals at an early as well as late stage.

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