Etiska aspekter av preimplantatorisk genetisk diagnostik och genterapi

Sammanfattning: The research in the field of biotechnology is rapidly developing all over the world. Modern biotechnology offers unique opportunities, simultaneously as it gives rise to a number of ethical issues. Preimplantation genetic diagnosis (PGD), PGD/HLA (Human Leucocyte Antigen) and germline gene therapy (GLGT) are controversial techniques. PGD gives a possibility to identify a genetic disease prior to the embryo’s implantation in the uterus. PGD/HLA involves selecting an embryo with genes coding for a specific tissue type, so that the child to be born can act as a donor to an existing sibling who requires a stem cell transplant. GLGT seeks to eliminate or change “bad” genes. The purpose of this study is to investigate student’s ethical attitude concerning PGD, PGD/HLA and GLGT. The empirical study was based on focus group discussions. Four group interviews were made, with 15 participants in all. The students are taking courses in biology or religion. The result from the interviews shows that the ethical issues are difficult to have a definite opinion in, because there are possibilities and risks involved in all these techniques, according to the students. A central part of the discussion was devoted to human dignity and the moral status of the embryo. They also see risks such as bioterrorism, designing the perfect humans, economic interests, medical risks, among many other risks.