Att vårda tills döden skiljer oss åt : Sjuksköterskors upplevelse av att vårda barn i ett palliativt skede
Sammanfattning: Background: Working in pediatric palliative care means that nurses must care for their patients with a family-centered approach. In this type of care, it is important to consider children's rights and give adapted care according to the child's development stages. Nurses need to relate to the six core competencies as well as the four fundamental work responsibilities. Palliative care should also be rooted in the four cornerstones of palliative care. Aim: The aim was to highlight nurses' experiences of caring for children at the palliative stage. Method: A qualitative literature review with thematic analysis. Results: Three themes were identified: The importance of patient- and family-centered care, feelings that arise when caring for sick children and prerequisites for care. Conclusion: The nurses felt that the work was emotionally challenging. Being able to relieve the child's pain and be available to the family was seen as an important task to increase the child's quality of life. Palliative care is a global health challenge with several remaining barriers. Knowledge, education and experience can help to overcome these obstacles, create awareness of palliative care and therefore achieve qualitative care that should be equal for all.
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