Att leva med kombinerad syn- och hörselnedsättning - vad spelar hörseln för roll?
Sammanfattning: Background: People with Usher type 2 have congenital hearing loss and acquired progressive visualimpairment, which usually presents itself in adolescence. Previous studies have demonstrated thatinformation, communication, orientation and mobility as well as psychosocial well-being are affected whenliving with combined vision- and hearing loss.Purpose: The purpose of this study was to explore how hearing, hearing aids and various assistive technicalaids are experienced in the daily lives of people with Usher syndrome type 2.Method and materials: In this qualitative study, eight persons with Usher type 2, with an average age of 57years participated. The data collection was conducted using semi-structured interviews with open questions.The material was analyzed according to qualitative content analysis with an inductive approach.Results: The result is based on four central areas: information, communication, orientation and mobility andalso the psychosocial perspective. With a progressive visual impairment, increased uncertainty is describedin the perception of spoken communication due to difficulties in reading lips and mimicry. Hearing aids arevery important in communication. Technology and assistive devices have opened up opportunities to acquireinformation through hearing when there is not enough vision. It takes competence and training to learn howto use the hearing and various aids when vision is failing. Environmental factors such as light and soundenvironment are crucial. Actively using the hearing aids is energy-intensive, hence it is necessary tosometimes rest the hearing to “last” a whole day. When orienteering and moving, the hearing and hearingaids can increase the feeling of ambient control and security. Hearing aids play a very important role in dailylife from a psychosocial perspective. Strategies are being developed to make everyday life work.Conclusion: Hearing, hearing aids and various assistive devices mean a lot to people with Usher type 2 indaily life. However, being dependent on technology and assistive devices to make everyday life work resultsin vulnerability if the technology does not work. Environmental factors are crucial for how information,communication and orientation and movement work. Strategies are being developed to save energy.
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