Anhörigas upplevelser av att vårda en närstående med demenssjukdom : En litteraturstudie

Sammanfattning: Background:As the life expectancy of the population increases, more people are diagnosed with dementia. The diagnosis causes a lack of self-care for the affected person, which can result in a relative taking up the role of caregiver. Thus, the quality of life of the relatives may deteriorate when their own needs are disregarded. Relatives support is important in everyday life. Aim: The aim of the study was to investigate family caregivers experiences of caring for a relative with dementia. Method:A literature review based on 13 qualitative articles, selected on the basis of inclusion criteria. Results: After compiling 13 scientific articles, four themes emerged; the life situation gets a turnaround, the disease changed everyday life, the caregiver's experience of health and the importance of knowledge and support for a good care.The caregiver experienced the changed life situation demanding. New roles as well as changing family relationships caused difficulties in life. The dementia disease caused personality changes that forced the relative to adapt the everyday life to the relative. The physical and mental health of the caregiver was adversely affected by the situation. Relatives felt that feelings of anxiety dominated over the loved one and in the thoughts of the future. Lack of information and knowledge caused difficulties in the care of the dementia patient. The importance of support in everyday life emerged. Conclusion: The life situation changes and life forces adaptation after dementia. Formal support is significant in everyday life. Relatives experience psychological and physical illness. Lack of knowledge and information can be an important cause of perceived bad health, access to support should be facilitated.