Att leva med en kronisk sjukdom-hjärtsvikt : Ur ett patientperspektiv
Sammanfattning: Background: Heart failure is a chronic disease, when a person is diseased, this also affects family, friends and the network around the person. Heart failure varies greatly related to day shape. Difficulties for families to understand the disease and its course of action are described. Experience with relatives highlights basic factors that can help to manage when a loved one is suffering from heart failure. Furthermore, related persons, patients and health care personnel are described, which together form a care team. Aim: To describe the patient experiences of living with heart failure. Method: A systematic literature study with a qualitative approach. Results: The result describes two themes and four sub-themes that treat patients' experiences of needs such as support and knowledge about the disease. Furthermore, consequences of the disease are described, such as limited autonomy and concern for changes in the future. It emerged that symptoms affect patients in everyday life and that knowledge is an important factor in being able to conduct self-care in the disease. Inadequate self-care increases the risk of symptoms which impair the disease and reduce the quality of life. Conclusion: People with heart failure experience suffering both mentally and physically. Relatives support and commitment play an important role in patients' vitality, this promotes self-care and daily routines can be carried out. Nursing staff play a major role in the disease process when the need for support and knowledge about the disease is desired. Key Words: Needs, Heart failure, Experiences, Systematic literature study, Qualitative
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