Livskvalitet 2-7 år efter allogen stamcellstransplantation

Sammanfattning: This is an empirical cross-sectional study with the aim to examine the patient’s comprehension about their quality of life within two to seven years after their stem-cell transplantation with reference to physical, social, emotional, psychological and functional wellbeing and to investigate if the patient groups have disease specific problems. Differences in quality of life between men and women and also between allogeneic and stem cell transplantation with an unrelated donor (URD) were studied. The measurement Functional Assessment of Cancer Therapy (FACT) and the bone marrow transplant subscale (BMT) is a 49 item, valid and reliable measure that was used. The questionnaire was answered by 43 of 47 patients (91%). There is a significant difference between men and women in physical, social and functional wellbeing. Women have a higher score in quality of life. Between allogeneic and URD transplantation there is a significant difference in some items. About 49 % of all patients had side effects after the stem cell transplantation. Of the whole group, 86 % measured a high score for emotional support from their family in the section about social wellbeing. Based on this study there is a need to modify the information to men and women respectively because of the significant differences in quality of life for these groups.  Measuring quality of life ought to be continuous before, during and after the process of stem cell transplantation. It is important for nurses to identify patients who are in need of support, to be able to give good nursing in both inpatients and outpatients.   Keyword: “Health” “Quality of Life” “Allogeneic stem cell transplantation” “Leukaemia”