Att vara syskon till ett barn med autismspektrumtillstånd En intervjustudie
Sammanfattning: Background: The relationship between siblings is unique. It is a mutual and animportant relationship that provides the child with tools for dealing with conflicts and communicating with others. One percent of all children in Sweden have diagnosed autism spectrum states, a neuropsychiatric disability characterized by difficulties in communication, cognitive and social ability. The siblings of these children are influenced differently by growing up with a child with autism spectrum states, but very few studies directly apply to the siblings themselves. Specialist nurses meet the children with autism spectrum states and so also their siblings in child health care, student health and in the field of primary care. Nevertheless, there are scarce guidelines on how nurses should catch up with these siblings and support them.Aim: The purpose of the study was to illuminate how siblings, ages 7-15, experience having a brother or sister diagnosed with autism spectrum disorder.Method: A qualitative method of semistructured interviews was chosen. The data collection was conducted through the Habilitation in Västra Götaland. Siblings for children diagnosed with autism spectrum states were asked. Six siblings participated. The analysis of data was performed on the basis of a qualitative content analysis.Results: During the analysis, six subcategories emerged which are summarized under two categories. Being in a family relationship; Living in a Family, Being Siblings and Attending to the Child's Good Qualities. To be challenged in the interaction; Finding Alternative Communication, Resolving the Child's Reactions, and wanting to share with others in the same situation.Conclusion: The attention and support that siblings receive is not sufficient. The Specialist nurse should have a family-focused approach as the entire family is affected by the diagnosis of autism spectrum states. Much of what the sibling tells about her relationship falls within what is a normal sibling relationship. But there is also a sense of responsibility and anxiety, an understanding of how much circulates around the child with autism spectrum states and a normalized everyday life where the siblings return and take a smaller place in the family.
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