Erfarenheter av att vara närstående till en person som erhåller palliativ vård i livets slutskede : En litteraturbaserad studie

Sammanfattning: Background – Most likely, nurses will be in contact with patients and their relatives in palliative care at the end of life at some point in their careers. Studies have shown that relatives (family members or close friends) play a crucial role in palliative care, and that communication is a key factor in providing support for relatives. For optimal care provision, it is essential for nurses to consider and comprehend the experiences of relatives involved in palliative care at the end of life. Aim – The aim of the study was to describe the experiences of being relative to a person receiving palliative care in the end of life. Method – For this study a literature-based study grounded in analysis of qualitative researchwas used (Friberg, 2017). The qualitative method aims to create an understanding of individual’s experiences, perceptions, and needs. Nine scientific studies where analyzed. Results – Three themes where found; 1) The importance of communication and cooperation, 2) Respect and understanding, 3) Emotional challenges. Relatives express a need for clear and accessible information to alleviate stress and enhance their ability to support their loved ones effectively. Active involvement in care decisions and a person-centered approach were underscored as pivotal. Conclusion – The study underscores the significance of tailored information dissemination, active involvement of relatives in care decisions, and a person-centered approach to honor the dignity of patients in end-of-life care. Addressing these aspects can significantly improve the end-of-life experience for patients and their relatives.