Att vara förälder till ett barn med diabetes typ 1 : En litteraturöversikt om hur föräldrar uppfattar omvårdnaden från sjuksköterskor inom diabetesvård

Sammanfattning: Introduction: Diabetes type 1 is a common chronic disease in children and adolescents. The disease affect, not only the child, but also the parents in their everyday life. The specialist diabetic nurse has a huge responsibility in supporting the parents to feel confident in managing the child’s diabetes. Aims of the study: To investigate how parents of children with diabetes type 1 perceive the care given from the specialist diabetic nurse and what wishes they have concerning the care they receive. Design and methods: Searches for studies in electronic databases were conducted between January 2013 and march 2013. A literature review containing 16 studies was compiled. Both qualitative and quantitative studies were used and analyzed according to Friberg (2006). Findings: Several parents had a positive view of the diabetic care they had received from the specialist diabetic nurse. Great knowledge, expertise in diabetic care and ability to inform the family in a proficient way were considered as important by the parents. To receive knowledge regarding diabetic care the parents preferred to be given practical education from the nurse, but also appreciated to get written information. The parents would have liked to get more emotional support during the time of the diagnosis, especially in forms of counseling and encouragement. They also whished that caregivers would have been more eager to prepare them in managing the disease outside the hospital.  Conclusions: The majority of the parents had an optimistic experience of the care they had received from the specialist nurse in diabetic care. To prepare the family for a life with diabetes it’s necessary with adequate education, encouragement and emotional support from the specialist diabetic nurse.