Derformitetskirurgi i växande barns ryggar : En intervjustudie om föräldrars upplevelser

Sammanfattning: Introduction: Children in early age diagnosed with scoliosis and in need of surgery will grow up to undergo several operations in the back. Parents play a major role in the care of their children during hospitalization. Purpose: The purpose of this study was to investigate parents´ experiences of having a child diagnosed with scoliosis before the age of five undergoing repeated surgeries in the back. Method: The study had a qualitative descriptive design. Five parents with children aged 5-15 years, who have undergone several operations were interviewed about there experiences of the child’s illness and treatment. Phenomenological-hermeneutical analyze where used. Results: The parents felt a sense of shock when they were told about their child’s diagnose and treatment. Continuity of personnel and clear information about there child’s illness and treatment has been considered important. The repeated operations and hospital stays have given them experience of their children’s reactions and needs, which has created a sense of calm with the parents Conclusion: Information and continuity were important component to make the parents feel included and confident. The experiences of the recurring operations provided some form of security as they recognized the child’s reactions as the same time the parents concern about the child relating to the operations will always be.