Vakad över men inte övervakad. Patienters upplevelse av egenmonitorering vid hjärtsvikt.
Sammanfattning: Background: Patients with heart failure have a chronic disease that worsens over time. Patients consume a lot of medical care, most of which is hospital care. A common cause of deterioration is deficiencies in self-care where, among other things, early signs of deterioration are not noticed. Telemedicine is a way to reduce the need for inpatient care, previous studies suggest clinical benefits. Few studies have been done with qualitative methods regarding self-monitoring of heart failure and only part of the patients' experience is elucidated. It needs to be investigated further to gain a deeper knowledge of the experience. Aim: To describe how patients experience using self-monitoring in heart failure. Method: Participants in a pilot project for self-monitoring of heart failure were asked to participate in the study, an appropriate sample was used. Nineteen participants were interviewed with open-ended questions. Participants were interviewed individually. The interviews were conducted and recorded via the digital meeting place form Zoom. An interview guide was used as a basis. The transcribed text was analyzed with manifest qualitative content analysis. Result: Six categories emerged; handling of self-monitoring, confirmation of how one feels, experience of one's own security, ability to manage one's illness on one's own, accessibility and continuity and control over one's life situation. Conclusion: The participants in this study felt secure from the self-monitoring and the feedback they received, but there were also feelings of insecurity where there was a lack of feedback on measured values. Furthermore, the analysis showed that participants experienced increased knowledge, increased awareness of the disease and improved self-care ability. The availability and continuity of care increased with self-monitoring, participants saw benefits during the ongoing pandemic. Finally, a feeling of control over their life situation emerged when the participants could control when and where measurements were to be performed and that the focus was shifted from illness to what they could influence.
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