Att hitta nya vägar som förälder : En litteraturbaserad studie om föräldrars upplevelser om att leva med ett barn med typ 1 diabetes

Sammanfattning: Background: Each year approximately 700 children are affected by type 1 diabetes in Sweden. This chronic disease has an impact on the whole family but especially the parents who have the responsibility as a caregiver. Parents are therefore in need of support from friends and family as well as help from the nurse to deal with the situation. The nurse can provide support with a family focused care and will therefore include the whole family and use their strengths and resources. Aim: The aim of this study was to describe parents' experience of living with a child with type 1 diabetes. Method: The method used was a literature study with the aim to contribute to evidence based care with an analysis based on qualitative research. Ten scientific articles were analyzed. Three themes and seven subthemes emerged. Results: Three main themes and seven subthemes emerged during the analysis that responded to parents' experience living with a child with type 1 diabetes. The main themes were the stress that parents are exposed to, need of help and the unique community. Conclusion: Parents experienced a change in everyday life for the whole family. Therefore, the nurse needs to be responsive and adapt the nursing care to the parents, so they can support the child in a better way.