Alzheimers sjukdom : Närståendes upplevelser i samband med vården - En studie av självbiografier

Sammanfattning: Background: Alzheimer's disease is a disease that primarily affects the elderly but also younger people. Alzheimer's disease is a type of dementia which means that you get changes in the cerebral cortex and cells gradually die. The disease causes memory loss and things that were obvious before will be difficult for the sufferer. Alzheimer's disease also affects next of kin to a large degree; they will have to take a great responsibility. The next of kin are entitled to support from healthcare. Aim: The aim was to highlight next of kin' experiences of healthcare to their family members with Alzheimer's disease. Method : The study was based on narratives, which in this case means analysis of autobiographies. Five biographies were analyzed in accordance with Dahlborg-Lyckhage Results : Four categories and eleven subcategories emerged which were based on what the next of kin had experienced. The experiences were reflected in four categories: powerlessness, joy in caring, grief and lack of trust. This result shows gaps in knowledge and treatment of relatives. To make it easier for the next of kin caregivers should for example provide information on the course of the disease, get individual support and caregivers should take next of kin seriously. Conclusion : Alzheimer's disease affects the entire family. It is important that nurses take their responsibility by providing information and support to the next of kin so that they can better deal with the situation. The next of kin are an important part of the sufferer's life and have influence for the development of the disease.