Föräldrars erfarenhet och upplevelse av att ha ett barn som får palliativ vård: En beskrivande litteraturstudie

Sammanfattning: Background: Palliative care is a collaboration between several different professions with relatives and patients as a central point. Children need individualized care where the needs are based on the child’s situation. Nursing care includes the person from the time the person is born until they die. Aim: The aim of the study was to describe parents experiences of having a child who recives palliative care. Method: The study was a descriptive literature study where eleven articles were compiled with parents' experiences of having a child who receives palliative care. Result: The results of the 11 articles are presented in four main themes: Parents' perceived feelings of having a child in palliative care, Relationships, Communication and Choice of environmental setting for pediatric palliative care. Four sub-themes are presented: Family relationships, healthcare staff and parent under Relationships and hospital and home health care under Choice of environmental setting for pediatric palliative care. Conclusion: Relatives are different and have different needs. It is therefore important that nurses work person-centred around both the patient and relatives, and listen to parents' wishes and needs.