Personer med Multipel Skleros upplevelser av att leva med sjukdomen, samt deras upplevelser av stöd och bemötande från vårdgivare : En intervjustudie

Sammanfattning: The aim of the study was to describe what it's like to live with Multiple Sclerosis (MS) and experiences of social support and being received and met by health personnel. The method was a qualitative interview study of descriptive design and was analyzed using qualitative content analysis. Three women and two men (26-75 years) with MS from two municipalitiesin central Sweden participated in the study. The main results showed that the participants felt the disease limited everyday life. The majority described feelings of injustice being affectedby the illness, but they now have a new perspective on life. Participants described lack of information and communication from health personnel. All felt there is a long wait to get appointments in specialist care and says it depends on too few staff. Participants felt that being received and met by health personnel have been good, some describes that lack of time and staff may influence the response from health personnel negatively. The conclusion was that the participants daily life was limited by the disease in various extent and could lead to strong feelings. Several felt they learned to live with the disease because of a positive attitude and persistence. Participants felt it was important to get information, rehabilitation, and that health personnel listened. However, the participants experienced long wait to get access to specialist care, and that the main support they got from there was through telephone contact.