Det står ’jävlig mamma’ skrivet i pannan på mig" : En kvalitativ studie om föräldrar till barn med diagnos inom autismspektrumet och deras vardag

Sammanfattning: The purpose of the study isto,based on network theory, systems theory and development ecological systems theory,understand parent’sexperiences of having children with autismspectrum, as well as understand the importance of social networksfor the parents. All of the intervieweeswere mothers. The results showed that it is important to parentsto have contact with other parents who are in the same situation as them. Many of the interviewees had a small social network. The parents have tostruggle to get the support they are entitled to and thereforetheyfeel likethe "annoying" parent. Some of the parents felt that they are socially isolated and do not have the energy to maintain asocial life. In some cases,thesurrounding had a lack of patience and understanding for the families with children with autismspectrumand the family did not have the energy to keep in touch with them.The resultsalso showed that all the interviewees have previously had difficulties in the cooperation with the school butithas slowly gotten better, which may be because the mothers have to be the "annoying" parents who require their rights to theirchildren.